After the initial first three days of hell - Hayley lost her smile and joy, she cried all the time, wouldn't sleep at all, and we couldn't go near her face without her freaking out! Hayley (and us) have now settled into the whole NG thing. At least now I don't have to stress if she doesn't eat properly or drink throughout the day, as I know she's getting what she needs through the tube.
Hayley has started enjoying food again, but still slowly building up to how much she used to eat. Two fantastic things about the NG tube:
1 - Hayley put on 140gms in one week!!! (after putting on only 40gms in 3-4 months, that's pretty awesome!). She still has another 3 kgs to get up to the 3rd percentile line...
2 - For the first time this year Hayley slept from 7:30pm right through to 6:30 am three times in the past week!!!!! So nice to have more than 3 hours sleep in a night Praise God!!!!!!!
I'm stilll pretty exhausted, but feeling more optomistic that there's a light at the end of the dark dinghy tunnel!

I'm so glad for you! What a wonderful update! :)

Wow, what a great update. So glad she gained the weight and is sleeping much better!

Praise the Lord!

Thank you so much for the update! I was wondering how you both were doing! I'm so glad to read such a great report! Keep us posted, momma! :)

Happy to hear!

This makes me smile! I'm so happy for all of you as I'm sure it wears on everyone. Praise God

Oh I'm so glad to hear she's already doing better :)
Keep up the good work Hayley!

Praise the Lord!![claphigh]

Oh what a relief that she is gaining weight and you are both sleeping better! Seeing this update gave me some happy tears [loveyou]

Thanks ladies. Hayley is still doing really well. We have been upping the feeds and she's coping well. Praise God this Friday we get to go down to 4 feeds a day! Hayley has slept through most nights the past week and a half, only waking twice due to cramps. Thankfully once I massaged her legs for 20 minutes she went stright back to sleep! In the past she would always stay awake the rest of the night. I am feeling alot more positive now. I think catching up on sleep will take a while, but I'm feeling alot less grumpier during the day now and slowly becoming 'normal' again.

Thanks ladies. Hayley is still doing really well. We have been upping the feeds and she's coping well. Praise God this Friday we get to go down to 4 feeds a day! Hayley has slept through most nights the past week and a half, only waking twice due to cramps. Thankfully once I massaged her legs for 20 minutes she went stright back to sleep! In the past she would always stay awake the rest of the night. I am feeling alot more positive now. I think catching up on sleep will take a while, but I'm feeling alot less grumpier during the day now and slowly becoming 'normal' again.


So glad to read this update, gal! Still praying for her/you! Praise the Lord for her progress!