Hayley had her sleep study on Monday night and she went perfectly well, she is now officially of off oxygen for good!!!! Praise God!!!!
She also had her Growth and Development clinic. The Psychologist said that Hayley's mental state and social skills are perfect for her age. The Physiotherapist and Paediatritian have decided that the Cerbral Palsy is worse than they first thought. So Hayley doesn't have mild CP, but moderate CP. :( They said it would be a very long time before she crawls, and don't want to say yet whether or not she will walk. Praise God, we have had two prophesies and one vision of that Hayley will walk - so we are not concerned about that. But this means unless/ until God heals her, we/she have a big road ahead of her/us.
First step is the Lion's Club are going to donate us the money to get Hayley a special chair for home so that she can sit up properly and we can wheel her around with us. The next step is that when we get the official letter from the Dr, we can officially join with the CP League here so we can get the support Hayley needs.
At this stage I am feeling a bit in shock about it all. I was prepared for an official diagnosis of Mild Cerebral Palsy, but wasn't expecting it to be much worse...

Continued prayers Kristy for you, your daughter and family on this journey. The journey of prematurity seems to have brought you through so many ups and downs, the Lord will continue to carry you through. Continue to keep us posted on how both Hayley and you are doing.

Praying for her...

I have a cousin with CP... doctors said she would never walk... her parents were not believers but one of her aunts was... my cousin was 7 years old and of course couldn't walk.... her legs were completely dragging if she tried to move around... she would pull herself only with her arms like crawling but without any movement of the legs...

That aunt (believer) went to visit them at their house and said she wouldn't leave until my cousin walked.... it took a month... of praying (WITHOUT CEASING), massaging, encouraging and working really hard trying to get her to walk ... and yes... after that month... SHE WALKED!.... my cousin still had to go through hip surgeries after that and she still has problems walking but... she walks! and her "walking" started when that aunt "didn't let go" (she is 34 now and happily married)

I pray things work faster than anybody expects for your daughter... It is great that you believe in our Almighty God.

Paloma.

What great news that she is doing well on so many levels. I'm sorry for the moderate diagnosis. That is a lot to take in. But the Lord is amazing! Keep holidng onto those promises that the Lord has given you and Hayley. He has spoken over her with life and truth. And I believe that will come to pass. Yes, there may be a long road but we'll pray you all through it. :) Much love Kristy!

Glad you were able to get an update on your little one, I understand how hard it can be on our mama hearts when we find out things are different or more serious than we first thought.
There is a lot of people out there who can help you and your dd to reach the potential that God has given her! That is great you can get a wheelchair for her and I am sure you will find there are lots of services available to her and your family as she gets older.

By the way can I also say it is awesome to get a diagnosis, but also don't put too much emphasis on it, God knows this child better than you and the therapists. I know you have a busy and possible hard road ahead but I also know that your dd will continue to amaze and bless you every day.
My ds has an Autism diagnosis, I was told last week it is pretty severe, that's hard for a mom to hear but after the initial shock, it makes me more determined to help him succeed and live up to the potential God has for him! My little boy ( now 7) couldn't talk at 4, now he is reading at a kindergarten/ 1st grade level
hugs and prayers, we are always here for you too!

Thank you for the update Kristy! I praise the Lord that Hailey is doing so well on so many levels! I don't know what's the appropriate thing to say about the CP diagnosis. I don't want to say I'm sorry because I know the Lord allowed this for some reason and even though I know it's going to be hard and HAS to be hard on you to have been told that about your sweet little one, I know you PTL that she is here, she is thriving, and is a HUGE blessing in your life. If that makes sense? People say how sorry they are to me al the time about Noah...and I try to get people to see what a blessing he was...no need to be sorry...the Lord's will was done, and what a blessing to see Him work in this life..KWIM?
I PTL that you are going to be able to get the equipment you need for Hailey, and that you will have support from the CP group there. What a blessing for you to have them. I pray you are overwhelmed with support and loving people!!!

How are things with the rest of the family? Are the other kiddos doing well generally? Are they doing well with Hailey and everything?

I have to say that I just noticed the babydoll in the picture with Hailey! How on earth did she make it being SO small and how on earth did she grow SO much in 6 months? If that picture isn't proof of our Lord and HIS miracles I don't know what is!! PTL that He has brought her so far!!

Have a blessed week dear one!
Amber

Thanks Amber. You know, I always wanted to name one of my girls Amber, but hubby isn't too crash hot on it.
The other kids seem to be doing fine. I think they don't quite understand it all, and Hayley is still the same cute little sister she always has been. They get involved in her therapy and everything, and at this stage Israel often begs to have Hayley 'play' with him in his room as the other two girls like playing Barbie dolls together. Hayley just loves being around her siblings, so it's just another bonus of Homeschooling.
It's all just starting to hit me, and I've started grieving for what should have been. However, I know I will get through it and God only gives us what we can handle - and it sure is also drawing me closer to Him.
However prayers for me and hubby wouldn't go astray. We are very close and are still getting along quite well, but I'm really starting to resent all the time he is spending at Church (he is involved in youth group, band, and any maintainence that needs to be done at Church - so he spends 3 nights out of each week at Church, and most Saturday mornings he has off work). I've been starting to feel like I'm getting snowed under. Don't get me wrong - when he is home he is highly involved with me and the kids, and he does alot around the house, but I just find it difficult not having him around as much.:cry: